TO CONTACT US:
Find our WMS Facebook Group and ask to join … you will be asked a few questions as we are a Private Group - please be patient / respectful as you will be speaking to a WMS Parent:
https://www.facebook.com/groups/41699142361
Or email us …
warburgmicrosyndrome@gmail.com
FURTHER INFORMATION:
NORD National Organization for Rare Disorders:
Warburg Micro Syndrome - NORD (National Organization for Rare Disorders) (rarediseases.org)
GARD Genetic and Rare Diseases Information Centre:
Micro syndrome - About the Disease - Genetic and Rare Diseases Information Center (nih.gov)
OMIM - Warburg Micro Syndrome:
Entry Search - warburg micro syndrome - OMIM
Wikipedia:
Warburg Micro syndrome - Wikipedia
In the UK we also organise accessible and inclusive adventures via:
https://www.popsy.org.uk
https://www.facebook.com/groups/POPSYCharity