In 2004, our daughter was diagnosed with WMS - I will always remember the journey home and my late-night internet search for information - there was nothing except medical publications and that is why this website exists ... so no one else ever faces that lonely search again !
Yes, your life will change forever but in a positive way - these youngsters bring so much joy we call them our WMS Smilers ! They are wise souls who listen to everything around them with heightened senses and a mischievous nature.
Most of our support is done via our Warburg Micro Syndrome Facebook Group - it offers a chance to speak to other Parents with years of practical experience. If you ask to join we will message you as soon as we can asking a little about your child and we would love to see a photo at this stage - before introducing you to your new WMS Family.
Research is still in its infancy - we don't know what tomorrow will bring but we are here to help you ...
We look forward to hearing from you !